Monday, February 6, 2017

No BUTTS About It!

For the last couple of weeks, also known as the last 10 weekdays, I have been undergoing radiation at Carle. Don't be fearful, it is not my brain this time, it's actually on, well... my butt. As many of you know, I split my care between RUSH University Medical Center in Chicago and Carle Hospital in Champaign. I do this because I initially began my treatment at RUSH when I was living in the suburbs. I am really comfortable with the care that I receive there and when I moved back to Mahomet, to live with my parents, I wasn't ready to give up the doctors that had taken such good care of me for two years.

It also wasn't feasible for me to burn up the highway and travel back up north weekly for chemo, so I also established care locally at Carle. At first, it was simply a babysitting job, butt it quickly transformed into a family as I formed close relationships to my oncology nurses here. You share really intimate moments with these people and adding them, as well as my doctor to my care team, has been one of the best decisions that I could have ever made. This has been exceptionally helpful as of late, considering my onco at RUSH is currently on maternity leave and some decisions had to be made regarding leg pain that I was having.

In my last blog, I mentioned that I had changed my chemo regime. It originally consisted of three different drugs, butt was changed because of the rampant side effects. My doctor at Carle and I agreed to keep two of the chemos going though, one specifically for my brain and one that is a systemic agent (does the job for my whole body). I initially experienced little to no side effects and was happy to be back in the fast lane of life.

However, shortly after the switch, I began to experience some leg pain in my right leg. At first it was very tolerable, butt then the discomfort began to increase and it ended up becoming somewhat debilitating. My pain would jump from my ankle bone, to my heel, perhaps up to my calf or behind my knee, or it could be in my thigh, my butt, or even as high as my lower back. It could threaten any one of those places at any time and quickly climb the pain scale to a 9/10 of the worst pain that I have ever felt. My pain tolerance is pretty solid butt when that intense throbbing would set in, only on my right side, I could be down for the count.

My doctor ended up ordering an MRI. I thought I had been dealing with a different set of side effects. Butt, as it turns out, the MRI showed that there was a tumor in/on my sacrum that was resting on a bed of nerves of the right side of my body and that was causing the pain. The tumor was not new, it had always just been lumped together with the cancer being in 'my bones.' The fix was a recommendation of ten radiation treatments. Now, this isn't a bad thing because two good things are coming out of the radiation. 1. We are getting rid of a tumor by zapping it. 2. We are getting rid of my pain. So, as much as I know you're desperate to feel sorry for me, don't.

Ten sessions is a little taxing just because it requires me to visit Carle daily, butt, I have also had the opportunity to expand my circle and make some new nurse friends as well. Radiation does not hurt at all and with this current radiation, I finally get to give my brain a break and concentrate on zapping these pesky tumors elsewhere.

So now, I'm basically getting my butt radiated. That's what I found out from Google anyway. I mean, my doctor told me, butt, I needed a little more clarification. I knew the general location of my sacrum, butt until I pulled up some images I didn't realize where it was for sure. Its a triangular bone and I thought it sat at the base of your spine. The medical definition gets kind of involved butt, I guess if I were to explain it to someone, as I am now... it does actually appear at the base of your spine between your hips and rests on your anus. I don't really need any anatomy lessons, I get it enough to know that the sneaky little laser is shooting close to my derriere.

After I check in everyday, I go change my clothes. Since it is the lower half of my body being radiated, I can leave my shirt on but I have to remove the lower half of my clothing sans socks. I then put an untied hospital gown on backwards with a robe over the top to protect my intimate parts. After that, two great gals call me back and all bets are off. And so is the robe! In the first few days, you hold your gown closed tightly behind you as your scurry to the table butt as you near the end of the sessions you opt to make jokes about you butt hanging out and how it has so many dimples that it must have a huge smile and a happy disposition. At that point, all of the embarrassment is gone.

As of today, I have two sessions left. Another MRI will follow in a few weeks just to make sure that they got what they aimed for; butt, based on how I have been feeling, I think it is going to be a success. From here, I will return to chemo and await all of my spring scans. And when it comes down to it, I have nothing BUTT good things to say about this treatment.








12 comments:

  1. Hey, friend

    Thanks for your updates. Sheesh. Another tumor in another location. What a disappointment. I'm sorry to hear.

    But you take things in such stride. Bless your heart. Thanks for being a champ and a great example for all of us out here.

    And thanks for taking us along on your journey. It helps us care, pray and hope with you.

    Blessings, friend. Please let us know what we might do for you and your family.

    Peace in Christ our Lord,

    Pastor Mark Jordan, New Horizon Church

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  2. Thanks for posting such a humorous read about your trials and tribulations. You are certainly taking all things in stride and have a great attitude to boot! Have they given you an end date yet or is the treatment not that far along yet? Please keep us posted on your journey through cancer and everything that happens to you.

    Kacey @ Glendale MRI

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